L’Everest d’Ernest c’est une autre ambition pour le handicap et les maladies rares.
On s’engage avec vous pour les enfants et leur famille atteints du syndrome isodicentrique du chromosome 15, l’idic 15.
En savoir plus sur ce syndrome
Notre volonté c’est de faire connaître ce syndrome, d’améliorer la prise en charge des enfants et de leur famille, de favoriser le vivre ensemble et changer le regard sur le handicap.
Un projet positif pour ensemble, atteindre les sommets !
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